BSPED2019

27 November 2019

08:00-19:00Registration
CME Day
City Hall Main Entrance
08:50-09:00Welcome & Introduction
Chair(s):Anitha Kumaran (Southampton) & Claire Hughes (London)
CME Officer Introduction
Anitha Kumaran (Southampton))
09:00-10:00Session 1
Chair(s):Anitha Kumaran (Southampton)
09:00CME1.1Investigation and evaluation of children with 46 XY DSD
Nils Krone (Sheffield, UK)
09:30CME1.2Talking to children about sex development
Julie Alderson (University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, United Kingdom)
10:00-10:30Oral Communications 1
Chair(s):Anitha Kumaran (Southampton) & Claire Hughes (London)
10:00OC1.1Exploring Trends in the Glucocorticoid and Mineralocorticoid Treatment of Congenital Adrenal Hyperplasia by Analysing Data from the I-CAH Registry
Irina-Alexandra Bacila (Sheffield)
10:15OC1.2Pituitary Apoplexy in an adolescent male with Macroprolactinoma presenting as middle cerebral artery infarction.
Sally Newbold (London)
10:30-11:00TEA & COFFEE
11:00-12:00Session 2
Chair(s):Anitha Kumaran (Southampton) & Claire Hughes (London)
11:00CME2.1Recognition and assessment of pituitary tumours
Assunta Albanese (London, United Kingdom)
11:30CME2.2Pediatric vulval disorders
Helen Lotery (Southampton))
12:00-12:30Oral Communications 2
Chair(s):Anitha Kumaran (Southampton) & Claire Hughes (London)
12:00OC2.1National United Kingdom evidence- and consensus-based guidelines for the investigation, treatment and long-term follow-up of paediatric craniopharyngioma
Hoong-Wei Gan (Great Ormond Street Hospital, London, UK)
12:15OC2.2A rare but very important cause of growth failure
Emily Cottrell (London, UK)
12:30-12:40CSAC Trainee Representative
12:30CME3CSAC Trainee Representative
12:40-13:30LUNCH & EXHIBITION
13:30-14:30Session 3
Chair(s):Anitha Kumaran (Southampton) & Hoong Wei Gan (London)
13:30CME3.1Challenges in the management of children born small for gestational age 
Phil Murray (Manchester, UK)
14:00CME3.2Investigation and management of congenital hypopituitarism
Evelien Gevers (London, UK)
14:30-15:00Oral Communications 3
Chair(s):Anitha Kumaran (Southampton) & Hoong Wei Gan (London)
14:30OC3.1Using Quality Improvement Methods to Enhance HbA1c Outcomes for Newly Diagnosed Children and Young People with Diabetes
Fiona Campbell (Leeds Children's Hospital, The Leeds Teaching Hospitals NHS Trust, Leeds, UK)
14:45OC3.22 year experience of 'Do-It-Yourself' Hybrid Closed Loop in an adolescent with Type 1 Diabetes
Shankar Kanumakala (Brighton)
15:00-15:30TEA & COFFEE
15:30-16:30Session 4
Chair(s):Anitha Kumaran (Southampton)
15:30CME4.1Diabetes technology update (CGM/CSII)
May Ng, OBE (Ormskirk, UK)
16:00CME4.2Promoting optimal self-management in type 1 diabetes – what can we offer?
Fiona Campbell (Leeds Children's Hospital, The Leeds Teaching Hospitals NHS Trust, Leeds, UK)
16:30-16:45CME Officer's Update & Conclusion
Chair(s):Anitha Kumaran (Southampton)
17:00-18:00Sponsored Symposium

28 November 2019

07:15-18:00Registration
City Hall Main Entrance
07:45-08:45Special DKA Session
Chair(s):Fiona Campbell (Leeds)
Assembly Room
07:45Fluid restriction in the management DKA in an intensive care setting - has the pendulum swung too far?
Rum Thomas (Sheffield Children's NHS Foundation Trust, Sheffield, UK)
08:15Management of DKA - Evidence and Consensus recommendations for the proposed changes to the management of DKA and to the BSPED Guidelines
Neil Wright (Sheffield Children's Hospital, Sheffield, UK)
08:45-08:55Welcome from BSPED Chair and Local Convenor
Assembly Room
09:00-09:45AGM - Endocrine Nurses' Business Meeting
Syndicate Room L
Session head(s):Lee Martin (London)
09:00-10:30Diabetes Professionals Day - Session 1
Chair(s):Nicola Trevelyan (Southampton)
Ferrier Hall
09:00DS1.1Practical Diabetes - Nutrition, food science and cooking – what role in management of diabetes in children?
Francesca Annan (London, UK)
09:30DS1.2Practical Diabetes - Using 'Carbs and Cals' in everyday practice
Chris Cheyette (London))
10:00DS1.3Practical Diabetes - Disordered eating and Type 1 diabetes
Aisling Pigott (Cardiff, UK)
09:00-10:30Endocrine Main Meeting - Oral Communications 4
Chair(s):Talat Mushtaq (Leeds) & Ruben Willemsen (London)
Assembly Room
09:00OC4.1ABSTRACT WITHDRAWN
09:10OC4.2Burosumab Initiation in a UK XLH Cohort: Real-World Use Resonates With Research Evidence
Christine Burren (UK)
09:20OC4.3Defects in LGR4 Wnt-β-catenin signalling impair GnRH network development, leading to delayed puberty
Sasha Howard (Queen Mary University of London and Barts Health NHS Trust, London, UK)
09:30OC4.4A Novel Clinical Risk Score That Accurately Predicts Recurrence of Craniopharyngioma - a Multicentre Cohort Study.
Nikolina Kyprianou (London)
09:40OC4.5Novel genetic defects in a cohort of Silver-Russell Syndrome (SRS) and SRS-like patients
Emily Cottrell (London, UK)
09:50OC4.6Understanding Differences of Sexual Differentiation (DSD) MDT services across the UK; current service provision and sharing best practice
Danielle Eddy (Cardiff`, UK)
10:00OC4.7Novel variants in the Leucine-zipper-like transcription regulator 1 (LZTR1) gene cause Noonan syndrome phenotype by upregulation of the RAS-MAPKinase pathway
Sumana Chatterjee (Bristol, UK)
10:10OC4.8SGPL1 deficiency leads to accumulation of sphingolipid species and downregulation of key enzymes within the steroidogenic pathway
Avinaash Maharaj (London)
10:20OC4.9Health Status of Children Aged 8-18 Years with 21-Hydroxylase Deficiency in the United Kingdom: Results of a Multi-Centre Cohort Study
Irina-Alexandra Bacila (Sheffield)
09:45-10:05PENS Guest Speaker
Chair(s):Lee Martin (London) & Louise Foley (Cardiff)
Syndicate Room L
09:45PENS1.1The evolving role of the children’s endocrine nurse
Jenny Walker (Leeds))
10:05-10:30PENS BSPED Prize
Syndicate Room L
Session head(s):Rebecca Broadbent (Bristol)
10:30-11:00TEA & COFFEE
11:00-12:30Endocrine Main Meeting - Symposium 1
Chair(s):John Barton (Bristol)
Assembly Room
11:00S1.1Endocrine Outcomes - Long term outcomes for young women with PCOS
Aled Rees (Cardiff University, United Kingdom)
11:30S1.2Endocrine Outcomes - Have modern treatment regimens improved neuroendocrine and cognitive outcomes after childhood brain tumours ?
Helen Spoudeas (London))
12:00S1.3Endocrine Outcomes - Maternal thyroid function in pregnancy and childhood outcomes
Marian Ludgate (Cardiff University School of Medicine, Cardiff, UK)
11:00-11:30Diabetes Professionals Day - Oral Communications 6
Chair(s):Melanie Kershaw (Birmingham) & Ruth Krone (Birmingham)
Ferrier Hall
11:00OC6.1A survey into the care of children with type 2 diabetes in England and Wales
11:06OC6.2An exploration of the perceptions and lived experience of primary school aged children using insulin pump therapy
Caroline Spence (Winchester)
11:12OC6.3Here’s the POInT: a multicentre European Primary Oral Insulin Trial.
Matthew Snape (Oxford)
11:18OC6.4Exam Preparedness in Students with Type 1 Diabetes and their Schools – a Quality Improvement Study
Hannah Yard (Cardiff)
11:24OC6.5Factors affecting the practice of routinely downloading blood glucose data at home for families and children with Type 1 Diabetes
Marisa Clemente (Southport)
11:30-12:30Diabetes Professionals Day - Session 2
Chair(s):Tim Barrett (Birmingham)
Ferrier Hall
11:30DS2.1Managing Diabetes in Special Circumstances - Caring for type 1 diabetes in socially deprived and BEM groups of children
Rakesh Amin (London))
12:00DS2.2Managing Diabetes in Special Circumstances - Avoiding hypoglycaemia during sporting activity
Tarini Chetty (Edinburgh))
12:30-13:30LUNCH, EXHIBITION & POSTER TOURS
13:30-14:30Endocrine Main Meeting - Oral Communications 5
Chair(s):Amanda Peacock (Leeds) & Noina Abid (Belfast)
Assembly Room
13:30OC5.1Project to Develop BSPED UK Standardised Guidelines for Sex Hormone Priming and Glucagon Stimulation Testing (GST) in Children and Adolescents
Christina Wei (London)
13:36OC5.2Longitudinal outcomes of well, term infants who present with persistent hyperthyrotropinaemia
Nancy Katkat (Southport and Ormskirk Hospital, Southport , UK)
13:42OC5.3Causes of Central Diabetes Insipidus in Children: A Single-Centre Experience
Ved Arya (London)
13:48OC5.4Tolvaptan for Hyponatraemia in Infants with Brain Tumours
Jaya Gopal-Kothandapani (London)
13:54OC5.5Recombinant human Insulin-like growth factor-1 (rhIGF-1) therapy: a 15-year experience in a tertiary care centre
Philippa Prentice (North Middlesex Hospital, London, UK)
14:00OC5.6Monitoring and long-term disease activity in children with X-linked hypophosphataemia on conventional therapy
Suma Uday ()
14:06OC5.7Longitudinal Changes in External Masculinisation Scores in Boys Born with XY Disorders of Sex Development
Loubna Kraria (Glasgow)
14:12OC5.8TSH-Receptor testing in pregnancy allows stratification of risk of neonatal thyrotoxicosis and promotes earlier discharge
James Law (Nottingham)
14:18OC5.9Rare causes of primary adrenal insufficiency (PAI) in children from Sudan
Younus Qamar (London)
14:24OC5.10Review of neonatal cortisol evaluation between 2012-2018 in a single centre: trends, outcomes and associations.
Elizabeth Boxel (Oxford University, Oxford, UK)
13:30-14:30Diabetes Professionals Day - Session 3
Chair(s):Dita Aswani (Derby)
Ferrier Hall
13:30DS3.1Enhancing Diabetes Care - Getting the best out of social media in paediatric diabetes
May Ng, OBE (Ormskirk, UK)
14:00DS3.2Enhancing Diabetes Care - Type 2 diabetes, an increasing problem: lessons from national surveys
Toby Candler (Cardiff, UK)
14:30-15:30Endocrine Main Meeting - Inquisitor Session
Chair(s):Justin Warner (Cardiff)
Assembly Room
14:30IN1Personal Practice Session
Tim Cheetham (Newcastle, UK)
14:30-15:30Diabetes Professionals Day - Debate
Chair(s):Martha Ford-Adams (London)
Ferrier Hall
14:30D1.1Diabetes Debate: For the Motion - "This House believes that continuity of care with doctors underpins optimal diabetes management in children and young people with diabetes"
Rachel Besser (Oxford University Hospitals NHS Foundation Trust, Oxford, UK)
14:30D1.2Diabetes Debate: Against the Motion - "This House believes that continuity of care with doctors underpins optimal diabetes management in children and young people with diabetes"
Anuja Natarajan (Doncaster))
15:30-16:00TEA & COFFEE
16:00-16:30Endocrine Main Meeting - Symposium 2
Chair(s):Justin Davies (Southampton)
Assembly Room
16:00S2.1History of paediatric endocrinology
John Wass (Nuffield Health Oxford Hospital, Oxford, UK)
16:30-17:00BSPED AWARDS
Chair(s):Justin Davies (Southampton)
James M Tanner Award presentation
Assembly Room
17:15-18:15BSPED AGM - BSPED members only
Assembly Room

29 November 2019

08:00-16:00Registration
City Hall Main Entrance
08:15-09:15Sponsored Symposium
Assembly Room
09:30-11:00Diabetes Main Day - Symposium 3
Chair(s):Rachel Besser (Oxford)
Assembly Room
09:30S3.1Diabetes Trials - Immunotherapy in type 1 Diabetes
Colin Dayan (Cardiff, Wales)
10:00S3.2Diabetes Trials - Role of the environment in the pathogenesis of Type 1 diabetes
F.Susan Wong (Cardiff))
10:30S3.3Diabetes Trials - Novel therapies for type 2 diabetes
Tim Barrett (University of Birmingham , UK)
09:30-11:00Nurses' Day for Endocrine Professionals - Session 1
Chair(s):Christine Davies (Cardiff) and Lee Martin (London)
Ferrier Hall
09:30PENS1.1PENS - Emergency care of infants with cortisol deficiency: the paramedic perspective
Robin Petterson (Cardiff))
10:00PENS1.2PENS - Cortisol deficiency – What’s next?
Nicky Nicoll (Bristol) & Rebecca Broadbent)
10:30PENS1.3PENS - Patients living with CAH
Sue Elford (Bedford))
11:00-11:30TEA & COFFEE
11:30-13:00Diabetes Main Day - Oral Communications 7
Chair(s):Eleri Williams (Winchester) & Fiona Regan (Wrexham)
Assembly Room
11:30OC7.1Increased and younger alcohol-related hospital admissions in young people with childhood-onset type-1 diabetes: a record-linked longitudinal population study in Wales
John Gregory (Cardiff, UK)
11:40OC7.2Impact of Continuous Glucose Monitoring on Sleep Quality in Children with Type 1 Diabetes and their Parents: A Pilot Study
11:50OC7.3Improving HbA1c Outcomes in Young People of Transition Age with Type 1 Diabetes Using Quality Improvement Methodology
Emma Dymond (Leeds)
12:00OC7.4Monitoring lipid profiles in children and young people with Type 1 Diabetes Mellitus: What should we do with these results?
Julie Park (Alder Hey Children's NHS Foundation Trust, Liverpool, UK)
12:10OC7.5Medication adherence during adjunct therapy with statins and ACE inhibitors in adolescents with type 1 diabetes
M. Marcovecchio (Cambridge)
12:20OC7.6Improving referral pathways from primary to secondary care in newly diagnosed Type 1 diabetes
Ambika Shetty (Cardiff)
12:30OC7.7Paediatric Type 2 diabetes in a single centre in East London in the period 2009-2018
Evelien Gevers (London, UK)
12:40OC7.8Children with type 1 diabetes on intensive insulin, in deprived areas and younger onset are at risk of being overweight.
Alexandra Urquhart (Cardiff)
12:50OC7.9Does having a first degree relative with Type1 Diabetes impact on a child and family’s engagement and glycaemic control?
Evelyne Kiu (Sheffield)
11:30-12:00Nurses' Day for Endocrine Professionals - Oral Communications 8
Chair(s):Christine Davies (Cardiff) & Lee Martin (London)
Ferrier Hall
11:30OC8.1Random cortisols – as useful as a chocolate teapot (but less tasty)?
Charlotte Elder (Sheffield Children’s NHS Foundation Trust, Sheffield, UK)
11:36OC8.2Adrenal Insufficiency: hydrocortisone prescribing and sick day rules
Emma Webb (Jenny Lind Children’s Hospital, Norwich, UK)
11:42OC8.3Specially Identified Patients (SIPs) – How do they work?
Vipul Rajyaguru (Nottingham)
11:48OC8.4Optimising Transition Care in Endocrinology: an example of patient-focused quality improvement.
Taffy Makaya (Oxford)
11:54OC8.5The impact of Prader-Willi Syndrome Multidisciplinary clinic on growth parameters
Kun Hu (Birmingham)
12:00-13:00Nurses' Day for Endocrine Professionals - Session 2
Chair(s):Fiona Ryan (Oxford)
Ferrier Hall
12:00ND2.2Endocrine management in Duchenne muscular dystrophy?
Jarod Wong (Glasgow, UK)
12:00ND2.1Assessing and monitoring growth in children with bone disorders
Moira Cheung (London, UK)
13:00-14:00LUNCH, EXHIBITION & POSTER TOURS
14:00-14:15BSPED 2019 Awards Session
Chair(s):Helen Storr (London)
14:15-15:45Diabetes Main Day - Symposium 4
Chair(s):Fiona Campbell (Leeds)
Assembly Room
14:15S4.1Improving Diabetes Care - How to use QI effectively
Tricia Woodhead (Bristol))
14:45S4.2Improving Diabetes Care - QI in action - the Sheffield Children's Hospital experience
Carrie Mackenzie (Sheffield))
15:15S4.3Improving Diabetes Care - Lessons from registries
John Gregory (Cardiff, UK)
14:15-15:45Nurses' Day for Endocrine Professionals - Symposium 5
Chair(s):Catherine Peters (GOSH)
Ferrier Hall
14:15S5.1Thyroid surgery in children: Why, When, How and Who
Tom Kurzawinski (University College London Hospitals NHS Foundation Trust, London, UK)
14:45S5.2Dose titration vs block and replace - the evidence in thyrotoxicosis
Tim Cheetham (Newcastle, UK)
15:15S5.3Congenital TSH deficiency
Nadia Schoenmakers (Cambridge Neuroscience, Cambridge, United Kingdom)
15:45-16:00Close of Meeting
Chair(s):Justin Warner (Cardiff)